I apologize for going so long between posts; here's an update. First, I did get my Actemra infusion http://www.actemra.com/ on February 2nd (missed my January 28th appointment, got my times crossed) and everything went smoothly, despite the snow storm. Second, I have realized a few things:
1. When I get my infusion I get a cocktail of Benadryl & Tylenol (I don't remember that from last year); no wonder I sleep through the whole experience.
2. I have Sjogren's Syndrome http://www.sjogrens.org/. I kept wondering why I was constantly thirsty, mouth dry, eyes dry, skin extermely dry. (The thirst had me afraid that I had developed diabetes). Now I use Biotene toothpaste, mouthwash, and gum, Thera Tears, and tons of lotion (shea butter) & vaseline (more expenses, sheesh!).
3. I need B12 shots and vitamins (sent rheumy an email about this); this exhaustion is kicking my behind and I am tired of napping my life away.
4. I think I have Costochondritis htp://emedicine.medscape.com/article/808554-followup, explains why my rib cage, from front to back, is so tender.
5. I need pain meds!!! That last flare was so painful and prolonged. I refuse to suffer through another one with pain meds (sent rheumy an email about this too).
6. I really LOVE my online RA family. They are supportive, informative, encouraging, tolerant (of my rants), funny, and always loving.
Next Actemra infusion http://www.actemra.com/ is schedule for March 2nd. Will keep you updated.
